From the Christopher and Dana Reeve Foundation website:
"The Senate passage of the first national public health bill to directly address paralysis is a landmark in the fight to develop cures and improve the quality of life for those living with paralysis," said Peter T. Wilderotter, president and CEO, Reeve Foundation. "Advancements are made every day in spinal cord injury research, but the Christopher and Dana Reeve Paralysis Act will speed progress and make research efforts more efficient."
The Christopher and Dana Reeve Paralysis Act will improve the quality of life for people living with paralysis and mobility impairments from any cause – stroke, ALS, spinal cord injuries and others. It encourages coordination of research to prevent redundancies and hasten discovery of better treatments and cures, as well as to improve the daily lives for those living with paralysis. The Act has three components that support and enhance paralysis research, rehabilitation, and quality of life programs:
- Paralysis Research - Expands research on paralysis at the National Institutes of Health (NIH). This will encourage collaborative research by connecting scientists conducting similar work to further enhance understanding and speed discovery of better treatments and cures.
- Paralysis Rehabilitation and Care - Builds on research to enhance daily function for people with paralysis, including a Clinical Trials Network, to measure effectiveness of certain rehabilitation tactics and encouraging shared findings on paralysis to improve rehabilitation.
- Improving Quality of Life for Persons with Paralysis and Other Physical Disabilities - Works with the Centers for Disease Control and Prevention (CDC) to improve the quality of life and long-term health status of persons with paralysis and other physical disabilities.
This has been a long time coming. A lot of people worked very hard for a very long time to get this passed in the Senate. Thank you, thank you, thank you.
1 comment:
With the new administration, many things are looking brighter for the SCI community - hopefully this will soon be a curable, or at least somewhat a Less devastating condition. - If you have the time, please have a look at me and my friends' petition
( http://www.thepetitionsite.com/2/signatures-for-spinal-cord-research ) Kind regards.
Thomas Borghus.
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